When diagnosed with an autoinflammatory disease, life changes. Not only for the person diagnosed or their family, but also for friends and peers. A sense of ‘life before’ and ‘life after’ diagnosis can arise, in which the ‘life after’, especially immediately after diagnosis, is peppered with challenges, doubts, and uncertainties.

Questions may pop-up such as how severe is the condition, will my child ever be healthy again, will I or my child be able to continue doing what I or he/she enjoys, what does the diagnosis mean for the future, what are all the different treatment options available? Questions demand answers, and although we do not have them all, we hope the content here will help you to navigate the journey of living with, or having a child with, an autoinflammatory disease .


 Download and Explore our Patient eBooks.

           230 pages of patient stories and first hand experiences

          Get advice to help you, if you know someone with a recurrent fever syndrome.

          Read about the multifaceted burdens of rare autoinflammatory diseases.

Navigating rare autoinflammatory diseases: our commitment to you

Uncover the complexities of autoinflammatory diseases and learn how we are focused on helping individual through awareness, connection, community, progress and change.